MoyaMoya in Kids & Teens

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Hello!

Hello! My name is Breeana Johng. I reside in the Southern California area, in Los Angeles County. I am currently 16 years old and have just completed my sophomore year at Whitney High School. I first showed symptoms of MoyaMoya at age 6. I was diagnosed when I was 11, in 2005, and received my first direct & in-direct vascular bypass surgery in April 2005. My second direct bypass was done in December of 2006 on the opposite side as the first when I was 13.

For the Parents

While I have seen that most people communicating on DJ's website are either adult patients or the parents of patients, I want to target kids and teens who are victims of MoyaMoya, especially those who have just been diagnosed and need a better understanding of what they are about to undergo. Through this website, I hope to communicate with kids and teens who might have any questions about the surgery and pre- and post-op procedure check-ups, and also with those who merely need someone their age who has experienced what they will go or have gone through..

For the Kids&Teens

Heey :) So I'm just your average girl, right? Well, not really, but chances are if you're reading this that you and I are quite similar. For one thing, we are diagnosed with MoyaMoya. For another, we both want(ed) a better understanding of exactly what this disorder is. Well, for starters, MoyaMoya is Japanese for "puff of smoke", because in some of the pre- & post-op scans, the part of your brain that needs oxygen looks like a puff of smoke. I want you to be comfortable and able to understand, maybe not all, but most of what you want or need to know. One of the pages on this website is all about the kind of stuff I wish I knew before I had my surgery, but if there is still more info you would like, don't hesitate to ask me! :)

Please feel free to email me at bbjohng@yahoo.com or talk to other MoyaMoya patients through the guestbook or chatbox :) Also, if you would like to share some pictures of yourself, email them to me!

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